Adapting Disability Research Methods and Practices During the Covid-19 Pandemic: Experiences from the Field

Lena Morgon Banks; Samantha Willan; Gakeemah Inglis-Jassiem; Kristin Dunkle; John Ganle; Tom Shakespeare ORCID logo; Rifat Shahpar Khan; Shaffa Hameed ORCID logo; Mercilene Machisa; Nicholas Watson; +11 more... Bradley Carpenter; Tracey Smythe ORCID logo; Nomfundo Mthethwa; Queen Seketi; Jane Wilbur ORCID logo; Ayanda Nzuza; Zeynep İlkkurşun; Shailaja Tetali; Lopita Huq; Amanda Clyde; Jill Hanass-Hancock; (2022) Adapting Disability Research Methods and Practices During the Covid-19 Pandemic: Experiences from the Field. IDS Bulletin, 53 (3). pp. 129-151. ISSN 0265-5012 DOI: 10.19088/1968-2022.130
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<jats:p>People with disabilities are often excluded from research, which may be exacerbated during the ongoing Covid-19 pandemic. This article provides an overview of key challenges, opportunities, and strategies for conducting disability-inclusive research during the pandemic, drawing on the experience of research teams working across ten countries on disability-focused studies. It covers adaptations that are relevant across the project lifecycle, including maintaining ethical standards and safeguarding; enabling active participation of people with disabilities; adapting remote research data collection tools and methods to meet accessibility, feasibility, and acceptability requirements; and promoting inclusive and effective analysis and dissemination. While this article is focused on adaptations during the pandemic, it is highly likely that the issues and strategies highlighted here will be relevant going forward, either in similar crises or as the world continues to move towards greater digital communication and connectedness.</jats:p>


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