Incidence, age at diagnosis and survival with dementia across ethnic groups in England: A longitudinal study using electronic health records.

Naaheed Mukadam ORCID logo; Louise Marston; Gemma Lewis; Rohini Mathur ORCID logo; Greta Rait; Gill Livingston; (2022) Incidence, age at diagnosis and survival with dementia across ethnic groups in England: A longitudinal study using electronic health records. Alzheimer's & dementia : the journal of the Alzheimer's Association, 19 (4). pp. 1300-1307. ISSN 1552-5260 DOI: 10.1002/alz.12774
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INTRODUCTION: We investigated the incidence of diagnosed dementia and whether age at diagnosis and survival afterward differs among the United Kingdom's three largest ethnic groups. METHODS: We used primary care electronic health records, linked Hospital Episode Statistics and mortality data for adults aged ≥65 years. We compared recorded dementia incidence 1997-2018, age at diagnosis, survival time and age at death after diagnosis in White, South Asian, and Black people. RESULTS: Dementia incidence was higher in Black people (incidence rate ratios [IRR] 1.22, 95% CI 1.15-1.30). South Asian and Black people with dementia had a younger age of death than White participants (mean difference for South Asian participants -2.97 years, (95% CI -3.41 to -2.53); and Black participants -2.66 years, (95% CI -3.08 to -2.24). DISCUSSION: South Asian and Black peoples' younger age of diagnosis and death means targeted prevention and care strategies for these groups should be prioritized and tailored to facilitate take-up.


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