Stigmas of congenital Zika syndrome: family perspectives.

Martha Cristina Nunes Moreira ORCID logo; Corina Helena Figueira Mendes ORCID logo; Marcos Antonio Ferreira do Nascimento ORCID logo; Ana Paula Lopes de Melo ORCID logo; Maria do Socorro Veloso de Albuquerque ORCID logo; Hannah Kuper ORCID logo; Márcia Pinto ORCID logo; Loveday Penn-Kenkana ORCID logo; Maria Elizabeth Lopes Moreira ORCID logo; (2022) Stigmas of congenital Zika syndrome: family perspectives. Cadernos de saude publica, 38 (4). e00104221-. ISSN 0102-311X DOI: 10.1590/0102-311X00104221
Copy

This article uses a socio-anthropological framework to explore the stigmas around interactions with children born with congenital Zika syndrome caused by the Zika virus epidemic in two Brazilian municipalities. Semi-structured interviews were conducted with parents and other relatives. We reflected on the search for meaning when having a baby with unexpected body marks, the moral suffering, the societal ableism, the burden of care, and the need for support networks. We concluded that public policies, especially social policies (health, education, and social assistance), are essential for compensatory mechanisms, recognition, and social inclusion of these children and their families.


picture_as_pdf
Stigmas of CZS.pdf
subject
Published Version
Available under Creative Commons: 4.0

View Download

Atom BibTeX OpenURL ContextObject in Span Multiline CSV OpenURL ContextObject Dublin Core Dublin Core MPEG-21 DIDL EndNote HTML Citation JSON MARC (ASCII) MARC (ISO 2709) METS MODS RDF+N3 RDF+N-Triples RDF+XML RIOXX2 XML Reference Manager Refer Simple Metadata ASCII Citation EP3 XML
Export

Downloads