Diagnostic odyssey for rare diseases: exploration of potential indicators
N Black;
F Martineau;
Tommaso Manacorda;
(2015)
Diagnostic odyssey for rare diseases: exploration of potential indicators.
Policy Innovation Research Unit (PIRU).
http://www.piru.ac.uk/assets/files/Rare%20diseases...
To explore whether an accurate, robust and cost-effective method can be developed for the routine measurement of the rare diseases diagnostic odysseys to enable the impact of interventions and policies, such as the 2013 UK Strategy for Rare Diseases, to be evaluated.
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picture_as_pdf - Rare diseases Final report.pdf
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subject - Published Version
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- Available under Creative Commons: NC 3.0
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